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Our purpose is to raise funds
for research so that we can find a cure and
effective treatment for Prader-Willi Syndrome, a
non-inherited and potentially life threatening
genetic disorder. It is a life-long condition that
affects appetite, growth, metabolism, cognitive
function and behavior. By participating in our golf
classic you become our partner in securing a good
life for Josi and others with PWS. The more
you do, the more we can do.
Thank you for helping.
It's about our grandchild, what more can we say?
Your hosts,
Ronnie and Ira Levine
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As you can
see, Josi is continuing to grow and thrive.
She participates in many activities and is
succeeding in school. We watch her achieve
many milestones with a smile on our face,
joy in our heart and tear in our eye.
You have have
helped her grow. You have helped to ensure
her future. |
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The Prader-Willi Syndrome Association, PWSA
(USA), was organized
in 1975 and provides a resource for education and information
about
Prader-Willi Syndrome. They provide life-time advocacy for
affected
individuals. As a major contributor to PWSA (USA), we are their
partner in finding an effective treatment.
Please visit
http://www.pwsausa.org/ |
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This event is sponsored by Josilyn Faith's Foundation
A 501(c)(3) status organization.
A copy of the
official registration and financial information may be obtained
from the Division of Consumer Services by Calling 800-435-7352
(toll-free from within Florida). Registration does not
imply endorsement, approval or recommendation by the state. |
